Wednesday, March 23, 2011

NICU: day 14

well it's officially been two weeks since this roller coaster ride in the NICU all began and just when we thought the ride was slowing down and almost over, it throws us for another loop and we nearly soil ourselves (that's a little comic relief i just used there...see when life gets hard, we try to find humor in every situation to lighten the mood a bit. it truly helps us cope...ya know, in the midst of a good cry too.)

anyway, we're all exhausted and my sleep cycle is all outta whack so i'm making this update a quickie because it's not going to be a good one. however, don't think for a hot minute that we have lost faith in how strong our sweet little girl is and how much stronger going through all of this as a family has made us. not to mention, we have more people praying for you, baby jemma, than i ever thought imaginable. friends i haven't talked to in years, family i've never met, and churches all over the country...knowing that feels amazing. that said, today jay headed up to the hospital during his lunch break to visit jemma bug and this is the exact text i received after he collected all the info...

"the CT report from yesterday showed a significant blood clot in her cerebellum (the area of her brain that controls balance). it's significant enough that it's causing hydrocephalus. i spoke with the neurosurgeon and he said that a temporary shunt will need to be placed in her head to help reduce the pressure. they said that the pressure may be why she's spitting up. 98% of the time, patients in this case will require a permanent shunt. they plan to do the procedure tomorrow, mid-morning. about the vegetation on her valve, it's very unusual which we don't like to hear, but the infectious disease doctors are confident that the antibiotics will help clear this up. i asked if it didn't clear up if they would need to do a procedure to remove it and they said it's very unlikely they'll have to do anything to remove it. keep praying, not a fun day when you get bombarded by doctors when you walk in the NICU. good news is that she can come home with a shunt once she is off her antibiotics."we all went back to visit her again tonight, including tita karla. i got to hold her for awhile as she slept and wiggled in my arms. it's amazing how therapeutic it is to talk and hold your own baby. lastly, a friend sent me this message and it really struck a chord with me especially after hearing the news today. she told me...

One of my favorite people often says that we have to have others to "stand in the gap" for us when we're too overwhelmed to pray for ourselves. I promise to do my part to "stand in" your gap.


jay and i both thought this comment is so true. because being "overwhelmed" these last two weeks is an understatement. so if you're reading this, please pause to think and pray about our sweet baby jemma as she has her surgery performed in the morning. we are so very anxious and hope all goes well. thank you so very much. we love you, jemma...keep fighting!!

4 comments:

A Mom to Two Lil' Ones said...

Kim, I am praying daily for Sweet Jemma and your family. Today I am praying especially for God to guide the surgeons hands as they place the shunt. Your baby girl is such a strong fighter and I can't wait until she is home with all of you. Much love and hugs, Anne

Anonymous said...

We are praying for Jemma here in California too! I pray for her and your family every night. Hang in there Kim..and Jay. We love you!
The Merlos

Suzanne said...

Just said a prayer for her procedure and for God to remove what ever the growth is on her mitral valve. HE is the great healer and can do all things! Hoping she is able to come home very soon after this shunt placement is successful and helps her little head. Love to you all!
Suzanne

Laura said...

Hey Kim, I've been praying for y'all and got TJ and my sister to, as well.